Meet Gill, living with PBC
Gill is a devoted mother and grandmother who loves spending time with her grandchildren and gardening. She also has a real passion for her volunteering work. She has lived for over 20 years with PBC.
Navigating the diagnosis journey: Gill’s Story
Gill explains the impact that her doctor’s guidance and patient community support had on her diagnosis journey.
PBC symptoms: Gill’s Story
The ‘PBC itch’ is a common and often debilitating symptom of PBC. Gill describes how fatigue and the ‘PBC itch’ have affected her life.
Lifestyle adjustments: Gill’s Story
Just like you are a unique individual, the lifestyle adjustments you make to manage PBC must be specific for you. Gill describes the steps that she takes.
Knowing what to ask your doctor: Gill’s Story
Coming to your PBC appointment prepared with a list of questions can help you get the most out of your PBC care. Gill recounts what she would advise herself when she was first diagnosed.
Her hope for PBC management: Gill’s Story
Gill shares her hope for PBC management.
Beyond tired: Understanding fatigue in Primary Biliary Cholangitis
Meet Wendy, living with PBC
Meet Jo, living with PBC
Collette: finding community through PBC
Caitlin: learning to accept care as a caregiver
Fireside Chat: Innovation and Policy Change in Rare Diseases in Europe
Understanding the true impact of living with FOP
Living with PBC: The Person Behind the Chart
A Life in a Day with FOP: from Empathy to Understanding
‘A Life in a Day’: the realities of living with FOP